Benefit for young girl raised $4,500 for special medical gear

The benefit here for Emily McNabb is being deemed a big success.

The 9-month old Guelph girl is under a sen­tence of death from a rare genetic disorder called spin­al muscular atrophy (SMA).

It is a degenerative illness that typi­cal­ly claims the lives of child­ren before they reach age 2.

Her parents, Adam and Sus­an, are hoping to purchase a machine that could alleviate her suffering, but it costs about $5,000.

The benefit was organized by Kevin Kroetsch, who owns Alex’s Restaurant in Elora, and Sussman’s of Arthur.

The evening included a five course meal and a fashion show, and everyone attending received a certificate worth $25 at Sussman’s.

The cost of the food was covered, and all the rest, including labour for the benefit, was donated.

Kroetsch phoned shortly after the event to state that the  benefit had sold out, with more than 80 people attending that night.

He said the benefit had raised over $4,500, and that will nearly enable Emily’s parents to purchase a machine that will alleviate her suffering. One special machine will cost about $5,000 and is not covered by OHIP.

“A big thank-you to the community for all their help,” Kroetsch said.