The More family, along with some of their extended family and friends, took part in the 5K Toronto Scotia Bank Waterfront Marathon on Oct. 18 as a fundraising venture on behalf of the Isaac Foundation, a registered charity started in 2006 after Isaac McFadyen was diagnosed with MPS VI, a very rare genetic condition
In 2011 Pam and Darren More’s son Jasper was diagnosed with the same disease and at the time was only the eighth known case in Canada.
Currently there is no cure for the degenerative disease, which affects airways, organs, bones, joints, growth and lifespan to name a few.
The More family, of Palmerston, works hand in hand with the Isaac Foundation to raise funds for research to find a cure.
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| Jasper More, who was diagnosed with MPS VI in 2011, gets some help along the route from his cousin, Quinn Dyce of Fergus. |
“We had about 30 people on our ‘team’ last weekend and together we raised more than $8,000, which will go directly toward research,” said Darren More in an email to the Advertiser. “We want to take this time to acknowledge all of the generous people that have sponsored us for this event or any other event in the past. We are truly grateful.”
The next local fundraiser is a fun curling bonspiel on Nov. 20. No experience necessary. For more information contact darren@theisaacfoundation.com.
